I stumbled upon this blog and thought some of you might be interested.
It’s called PropyleneGlycolAllergy.com and although the last post was awhile ago, there might be some useful info there.
I hope you all are coping well and able to enjoy the spring. We are up to our ears in construction and I have also been caring for Sadie, my new puppy, who is a handful! I haven’t had much time to be at the computer other than for work, but have been plugging away at a couple posts that I hope to get up as soon as the construction noise dies down.
Sending you love,
I stumbled upon this course and thought it might be useful for others wanting to know more about glycols. It’s by the Agency for Toxic Substances and Disease Registry, under their Environmental Health and Medicine Education department. It has info on how PG behaves in the body, what toxicity looks like (for people who are not allergic to it) and explains how it breaks down.
The self-study online course is for people dealing with environmental hazards and toxic substances. Although propylene glycol used in small amounts is considered safe (except to some of us who are sensitive) in large amounts, it is harmful to everyone.
The course is called Ethylene Glycol and Propylene Glycol Toxicity, and it’s available in a pdf or online. There are even quizzes! When you visit the page, there’s a green box on the left side with links to various parts of the course. You can jump right to the Propylene glycol section if you like and skip the rest, or dive in for the full Monty.
Leave a message in the comments below if you tried it and learned something new, or if you just have something to say about this as a resource.
Here are links to recent studies about glycol allergy and sensitivity. Please comment if you find links to other peer-reviewed studies about glycol allergies.
PEG Allergy/PEG Sensitivity
From: Allergy, Asthma & Clinical Immunology 2016, 12:67
Three cases of anaphylaxis following injection of a depot corticosteroid with evidence of IgE sensitization to macrogols rather than the active steroid
From Clinical and Translational Allergy, 2017; 7: 2
From Angewandte Chemie, International Edition, Vol 49, Issue 36
From Journal of Allergy & Clinical Immunology, October 03, 2018 (Requires fee or membership to access)
From Ask the Expert: American Academy of Allergy Asthma & Immunology, 3/6/2013
From Allergy Asthma and Clinical Immunology 12(1) · December 2016
From Allergy: European Journal of Allergy and Clinical Immunology Volume 61, Issue 8, August 2006
PG Allergy/PG Sensitivity
Propylene Glycol: An Often Unrecognized Cause of Allergic Contact Dermatitis in Patients Using Topical Corticosteroids
from Skin Therapy Letter, Volume 16 Number 5, May 1, 2011
After trying to set up a discussion group for us on my website and finding myself beset with spam before I could even get it going, I heard back from Health Unlocked, a host for health-related communities I’d contacted early on. I had applied to run a community for us there, but discovered we didn’t quite fit their eligibility requirements since we are not part of a non-profit organization.
After talking with me about our purpose, they came back with a invitation to put our discussion group on their platform.
I’ve been setting up the community and would love to have you come on over and start the discussion! You’ll need to join HealthUnlocked – it’s free – and then follow the “Allergic to Glycols” community. The link to it is below.
After you follow Allergic to Glycols, read the “Start Here” post, then introduce yourself under “Share Your Story.”
I’m working on linking resources from the site to the discussion group and back, and that will take me a few days, but check out the community and let me know what you think!
Find the discussion group here: https://healthunlocked.com/allergic-to-glycols
There is also a link on the home page in the right sidebar.
Please check all of your EPiPens to see if they need to be replaced. Brands are Mylan and Meridian, with expiration dates of April, May, September and October 2017. The recalled batches may have faulty injectors, so you think you were dosed, but it doesn’t work properly.
Here is the article with more info
Well, I have some disappointing news: I’m not going to be able to successfully set up a discussion forum on the site – at least not in the foreseeable future.
I put the structure in place, set up some boards and immediately got hit with multiple fake signups and repeated brute force attempts to access the back end of the site by fake users.
Although there are controls in place to deal with some of that, the hosting plan I use is not set up for the kind of traffic that showed up. I think it would have been no problem if it were just legit users, but combined with the potential hackers, I don’t have the bandwidth or resources to take that jump.
I will still be migrating the site to a more robust platform, but that will not change how you get to the site. I don’t expect any interruptions, but I’ll keep you posted.
Sorry I got your hopes up! Someone had suggested staring a facebook discussion group and if someone wants to do that, feel free.
Just wanted you to know I’m still working on the discussion forum and the new site. I have all the existing content up on the test site and am now working on the forum functionality.
If there are specific discussion topics you’d like to see, post them below and I will pick a few to use in the structure. Of course, new topics can be added later, but it’s always nice to have something relevant as a placeholder.
As you can see, I have someone to help me with the site, and she’s decided that the best way to do that is to sit on my laptop.
I hope you are all staying well and happy. There’s a lot of stuff going on in the world right now and that can make it hard to manage allergies. Self-care is essential to survival, and even though you may be feeling overwhelmed or anxious, it only takes a minute to read a label. Make sure you eat well and support your body so it can carry you through when you need it.
Sometimes the best thing we can do is take a time out to still the mind and move the body, so take a walk, do some stretches, breathe deeply, and exhale all your worries. Focus on what you have, and what is good and right in your life for at least five minutes a day and I guarantee you will have more energy in your body and peace in your mind.
Is there something you’ve found that particularly helps you get through tough times? Feel free to share it in the comments below.
Lots of love,