A New Resource for Education

I stumbled upon this course and thought it might be useful for others wanting to know more about glycols. It’s by the Agency for Toxic Substances and Disease Registry, under their Environmental Health and Medicine Education department. It has info on how PG behaves in the body, what toxicity looks like (for people who are not allergic to it) and explains how it breaks down.

The self-study online course is for people dealing with environmental hazards and toxic substances. Although propylene glycol used in small amounts is considered safe (except to some of us who are sensitive) in large amounts, it is harmful to everyone.

The course is called Ethylene Glycol and Propylene Glycol Toxicity, and it’s available in a pdf or online. There are even quizzes! When you visit the page, there’s a green box on the left side with links to various parts of the course. You can jump right to the Propylene glycol section if you like and skip the rest, or dive in for the full Monty.

Leave a message in the comments below if you tried it and learned something new, or if you just have something to say about this as a resource.

Amber

 

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*Show This to Your Doctor, Part 2

Here are links to recent studies about glycol allergy and sensitivity. Please comment  if you find links to other peer-reviewed studies about glycol allergies.

PEG Allergy/PEG Sensitivity

Polyethylene glycol as a cause of anaphylaxis

From: Allergy, Asthma & Clinical Immunology 2016, 12:67

Three cases of anaphylaxis following injection of a depot corticosteroid with evidence of IgE sensitization to macrogols rather than the active steroid

From Clinical and Translational Allergy, 2017; 7: 2

Poly(ethylene glycol) in Drug Delivery: Pros and Cons as Well as Potential Alternatives

From Angewandte Chemie, International Edition, Vol 49, Issue 36

Polyethylene Glycol: Not just a harmless excipient

From Journal of Allergy & Clinical Immunology, October 03, 2018 (Requires fee or membership to access)

Allergy to Macrogols (Polyethylene Glycol)

From Ask the Expert: American Academy of Allergy Asthma & Immunology, 3/6/2013

Anaphylaxis following a transvaginal ultrasound

From Allergy Asthma and Clinical Immunology 12(1) · December 2016

Two cases of anaphylaxis to macrogol 6000 after ingestion of drug tablets 

From Allergy: European Journal of Allergy and Clinical Immunology Volume 61, Issue 8, August 2006

PG Allergy/PG Sensitivity

Propylene Glycol: An Often Unrecognized Cause of Allergic Contact Dermatitis in Patients Using Topical Corticosteroids

from Skin Therapy Letter, Volume 16 Number 5, May 1, 2011


We Have a Discussion Group!

After trying to set up a discussion group for us on my website and finding myself beset with spam before I could even get it going, I heard back from Health Unlocked, a host for health-related communities I’d contacted early on. I had applied to run a community for us there, but discovered we didn’t quite fit their eligibility requirements since we are not part of a non-profit organization.

After talking with me about our purpose, they came back with a invitation to put our discussion group on their platform.

I’ve been setting up the community and would love to have you come on over and start the discussion! You’ll need to join HealthUnlocked – it’s free – and then follow the “Allergic to Glycols” community. The link to it is below.

After you follow Allergic to Glycols, read the “Start Here” post, then introduce yourself under “Share Your Story.”

I’m working on linking resources from the site to the discussion group and back, and that will take me a few days, but check out the community and let me know what you think!

Cheers,
Amber

Find the discussion group here: https://healthunlocked.com/allergic-to-glycols
There is also a link on the home page in the right sidebar.


URGENT!!! EPIPEN Recall!

Please check all of your EPiPens to see if they need to be replaced. Brands are Mylan and Meridian, with expiration dates of April, May, September and October 2017. The recalled batches may have faulty injectors, so you think you were dosed, but it doesn’t work properly.

Here is the article with more info

Amber


Discussion Forum Check-in Part 2

Well, I have some disappointing news: I’m not going to be able to successfully set up a discussion forum on the site – at least not in the foreseeable future.
I put the structure in place, set up some boards and immediately got hit with multiple fake signups and repeated brute force attempts to access the back end of the site by fake users.

Although there are controls in place to deal with some of that, the hosting plan I use is not set up for the kind of traffic that showed up. I think it would have been no problem if it were just legit users, but combined with the potential hackers, I don’t have the bandwidth or resources to take that jump.

I will still be migrating the site to a more robust platform, but that will not change how you get to the site. I don’t expect any interruptions, but I’ll keep you posted.

Sorry I got your hopes up! Someone had suggested staring a facebook discussion group and if someone wants to do that, feel free.

Be well,

Amber


Check in on Discussion Forum Progress

Hi everyone,

Just wanted you to know I’m still working on the discussion forum and the new site. I have all the existing content up on the test site and am now working on the forum functionality.

juju-my-assistant-400px

Jujubeen, My Assistant

If there are specific discussion topics you’d like to see, post them below and I will pick a few to use in the structure. Of course, new topics can be added later, but it’s always nice to have something relevant as a placeholder.

As you can see, I have someone to help me with the site, and she’s decided that the best way to do that is to sit on my laptop.

 

 

I hope you are all staying well and happy. There’s a lot of stuff going on in the world right now and that can make it hard to manage allergies. Self-care is essential to survival, and even though you may be feeling overwhelmed or anxious, it only takes a minute to read a label. Make sure you eat well and support your body so it can carry you through when you need it.

Sometimes the best thing we can do is take a time out to still the mind and move the body, so take a walk, do some stretches, breathe deeply, and exhale all your worries. Focus on what you have, and what is good and right in your life for at least five minutes a day and I guarantee you will have more energy in your body and peace in your mind.

Is there something you’ve found that particularly helps you get through tough times? Feel free to share it in the comments below.

Lots of love,

Amber

 

 

 


Discussion Group/Forum?

Hello,

Kerry brought up an idea I’m looking into: A discussion group. I had thought it would be nice to have a forum, but didn’t think there were enough members or interest yet. Please let me know if you’d use a discussion group, and in the meantime, I’ll see how long it will take to set up. I can probably have it up by the end of the weekend if there’s interest.

Let me know what features you’d like to see.

Amber